OK, so I've been lazy

I have been enjoying being at home and having my amazing brother, Rex, taking care of me. Rex has gone back to Montana and I am zooming along the recovery schedule. I have been reduced to only one check up a week! All of my cell counts are in the normal range and I am not getting IV's at home!
In fact after looking at my blood work and exam results they have cut the dosage on the anti rejection drugs. Friday I am going to get my CVC removed and my 60 day bone marrow biopsy. I have been extremely blessed through out this whole process. I attribute my recovery to all those who prayed for me and sent their love my way!! Thank you to every one!

Going Home!!!!

yippee going home yea yea!!
Waiting for the pharmacist to tell us about all the drugs.

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All right so after I taunted cancer, chemo kicked my arse.

Hello Boys and Girls!!! The past couple of days have been a struggle. Between all the pills, nausea and urgent diarrhea I have been tired to the bone. Physical therapy has been coming by trying to get me to walk and ride the bike. Not fun when you have the ring of fire to sit on! So far I have only lost 8 pounds and most of my hair. Thanks again for the hats! mmmmm shuggly warm hats!

Who's the punk now?! huh, cancer? HUH!?

So, I am doing great! All the docs are quite pleased with my progress. Listening to Elvis! Day +4.

The only side effects so far are itchiness and a low constant level of nausea.
Yesterday I bought a new steering wheel for my racing games. I found it on CraigsList.orgIt will be delivered to my room tomorrow.

WINDOW KITTY IS WATCHING YOU!!!
(so leave a nice post OK?)

UPDATE: 2:15pm Had some lunch and pie. mmmmmmmmm.pie π
Last night I had a weird headache that is puzzling the docs. Maybe it is the rocks breaking loose up there.

Everyone Wants to Know...

So, before everyone asks, I slept through the whole thing. Transplant day for me lasted about three hours total. I answered a lot of question and then took a nap. I went to the nutrition room and got a cup of coffee. Saw the doctor in hall on the way back and she shouted "two thirty." Drank coffee and took my meds. Twenty minutes later they came in and gave me massive doses of benedryl. Then I took a nap. Woke up later to having vital signs taken and promptly went to sleep. Day before that was almost identical except replace anti-nausea drugs for benedryl.

So, I am not in any danger nor am I sick, just very well rested.

NO VRE FOR ME!

VRE is a resistant to antibiotic intestinal virus that some people have but does not affect them because the immune system keeps it in check. When they supress my immune It could be that this virus could grow unchecked. But... I don't have IT!!! That means visitors and caregivers do not have to put on gloves and gowns when they come to see me! YAY!!

Spleenerific

The Spleen filters out old blood cells and invaders that are attatched to anti-bodies. So if it is enlarged it could be a good sign. It is also one of the symptoms that caused me to be diagnosed. A normal spleen is 4-5 inches long, at the time of diagnoses mine was 21 inches.WOW!!

MY Super Spleen! (I love it!)

My spleen was active last night. I hope it reacting to all the dead and dying cancer cells!!!
Go SPLEEN Go!!!
Everything is going all right. I finally got about 5-6 hours of sleep this morning.
Day -5!!!

Oh No, maybe.

So my toilet started leaking and they moved me across the hall. When we trans ported the IV machine the chemo line got kinked. So now we have to decide what to do with rest of this dose.

UPDATE: they are running the rest of the dose and because I am super duper they are raising the dose for the rest of the infusion. DIE CANCER DIE!!!!! MUH HAAA HAAAA HAAAAA HA!!!!

Slow day.

Routines are being established. I am still eating like crazy. In fact I am waiting for lunch. Stil have not slept much but since they are not making to many mental demands I am keeping up.

No visitors yet today. They think the surgery prep cleaner gave me a rash as they discontinued it and the rash is subsiding. Figures, only Rebel Randy™ can turn medicine into a detriment!

Things are going well.

Started day 2 of Busulfan. Everything is going well! I am having trouble sleeping, but the nurses assure that there is no set bedtime around here, so for now I am not in trouble. Speaking of nurses, they have all been very helpful and informative, explaining all of the drug types and IV contents and why I am taking them.
So around here it is Day 2, and Day -6, and Day 4. (I don't know yet if they are gonna count day zero or not, ya know that numberline thing)

I'm OK, no really... it is all good!

So, Nurse Karen just finished my first infusion. So far no puking or anything uncomfortable. have to pee about every ten minutes as the have a constant IV saline drip. Doctors just left after a quick exam. Took eleven pills and gave sixteen blood samples so far today.